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PFFD in Boston Area

My 15 month old daughter has unilateral PFFD w/fibular hemimelia. She was in a Spica cast for six weeks last summer, and is doing great. She is starting to walk with help and stand on her own. We were wondering is there anyone else out there in the Boston area with PFFD? If so, where/who do you recommend for treatments? It's such a rare condition, that it's hard to find others and support groups sometimes. Thanks for any info and help you can give!