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Bilateral PFFD

My daughter who is now 8 yrs old also had billateral PFFD. We are interested in joining everyone for a retreat. We would love to gain some friendship and help each other. I understand MN is an optional for the retreat site. If the retreat is planned, we will join. I also want to put it out there for anyone who lives closer to Ohio and the surrounding states that can't travel to MN, maybe we could set up another retreat for those who can't make the MN trip. We live in KY.