I am going to participate in a local rally that provides info on different disabilities and birth defects. My daughter has pffd and I was wondering if anyone could help me with what information I should provide. I appreciate all the help in advance. Thank you!
info
I'm not sure what you already have or what you're looking for, but there is some great info in the Guides on this website. The links should be listed on the left of your screen. Here are the links if you don't see what I'm referring to:
http://www.pffd.org/a_guide_to_pffd
http://www.pffd.org/node/7
As a minimum, I would tell people what pffd is and what does/doesn't cause it.
This sounds like a neat event. I hope it goes well!
Beth
Thanks Beth. I had thought
Thanks Beth. I had thought about that