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A couple of old x-rays and curious about classification.

Hi,
I thought i'd finally get round to posting a couple of my X-rays from 1983-84. The first one is before any surgery, and the second after a wedge osteotomy to correct my gross coxa vara.

I've always been curious to know which Aitkens classification, and now Paley classication I would be given??
Over here in the UK my orthopaedic consultant went with Gillespie & Torode for classification, Group I, with marked femoral shortening.

PFFD chat June 28

In case anyone is still checking in here, just a reminder that there is an online chat this week on chatzy.com on the topic of congenital limb differences, which includes Congenital Femoral Deficiency (sometimes known as PFFD). Great opportunity to ask very experienced limb differences surgeons questions about lengthening, deformity correction etc. Also a good way to meet other families and chat with them.

Please contact icll@lifebridgehealth.org for log in information.

A Dolphin Tale

Online PFFD chat March 15

Quick reminder - the monthly chat is Thursday March 15 at 8 PM. This chat is specifically for conditions such as Congenital Femoral Deficiency (aka pffd) and Fibular Hemimelia.

For more info, or for the password, please contact icll (at) lifebridgehealth.org . PLEASE be sure to give a brief description of your child (age, diagnosis and treatment type thing) so that we know you aren't one of the spam emails we have been getting lately.

Lee

Toeing in

I am interested in finding out if anyone that has had the Van Ness Rotation surgery has problems with thier leg toeing-in while walking. I have always heard that the Van Ness Rotation de-rotates, but today a doctor told me that my toeing-in is at my hip and my hip has arthritis. I am not convienced. I get so frustated when you go to the doctors and they don't touch you, watch you walk maybe 12 feet, and look at a couple x-ray. Which I might add were taken while I was weight bearing, completely different from other x-rays in the past.

PFFD online chat February 16

Quick reminder - the monthly chat is Thursday Feb 16 at 8 PM.

For more info, or for the password, please contact icll (at) lifebridgehealth.org .

Dr Herzenberg and Standard should both be there.

shoe lifts

My 17 month old boy, Isaac, has a 1 inch shoe lift. Just wondering if anyone who has used shoelifts goes to a specialist that makes lifts specifically for people with pffd? The man we have gone to for lifts has never made one for a child before and also, he only makes them typically for people with very minor discrepencies. Any advice on this subject would be appreciated , thanks, Katie

PFFD online chat on Thursday January 12

Quick reminder since most of the details are in previous posts. The next chat on PFFD / CFD and Fibular Hemimelia is this coming Thursday. Dr. Standard from the International Center for Limb Lengthening will be hosting this week. This is a great opportunity to ask a very experienced limb lengthening surgeon questions, and even have him review x-rays if you would like.

For more info please contact icll (at) lifebridgehealth.org and give us enough background info that we know this is a 'legitimate' congenital limb differences request (vs the "I just want to be taller" requests we also get).

PFFD chat on Thursday Dec 1

Quick reminder - the next CFD/PFFD, FH chat is on Dec 1 at 8 PM ET.
Contact icll (at) lifebridgehealth.org for more info; please include description of your child so that we can tell the legitimate requests from the drive-bys.

Insurance/payment options for medical treatment

So my daughter will have her first surgery in September of 2010 and I am anxious on what to do with insurance! Is there any benefits, programs or good insurance companies anyone can reccommend? Im pretty clueless when it comes to insurance because I have never needed anything more than a perscription or two! Thanks!

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