I am Ella, I live in Brighton in the UK, and I am a documentary film director who has bilateral PFFD. I am making a film about my experience and would love to connect with other Adults who have the same classification as myself, which is Paley Type 3B Bilaterally, and Aitken Classification D. It would be fantastic to meet people who have and haven’t had surgery. I see that there are 2 women who have written on this site; Kelly Laura who is also in the UK, and also Steph, who both sound similar to myself.
I am Ella, I live in Brighton in the UK, and I am a documentary film director who has bilateral PFFD. I am making a film about my experience and would love to connect with other Adults who have the same classification as myself, which is Paley Type 3B Bilaterally, and Aitken Classification D. It would be fantastic to meet people who have and haven’t had surgery. I see that there are 2 women who have written on this site; Kelly Laura who is also in the UK, and also Steph, who both sound similar to myself.
I just celebrated my 88th birthday. I am still quite active. I am permanently wheelchair bound but as long as I can still drive and get around that is all that counts!!
Hi, seeking advice. My daughter has PFFD. We chose not to amputate her foot, deciding that she could make that choice on her own. She is 13 now, and is considering it...I'm am wondering if anyone has experience with this and can give insight on what to expect in regard to recovery, phantom pain, mobility, etc. thank you!
I am 32 years old and have pffd, had Symes procedure at age 3 and have worn a prosthesis ever since. I am a nurse, very active person but here recently I have had problems with finding soneone to make me the appropriate prosthesis. I currently have the C leg. Anyone with any suggestions.
I am writing this to share the life of a disabled person, specifically a PFFD, prior to WWII who grew up in the 30s. Life was different and medicine, knowledge and sophisticated equipment were not available as in today’s world. A month after I was born, which would be about February or March of 1931, I was whisked away to a hospital to ascertain the problem related to my right leg - hip. X-rays revealed no head to the femur and no hip socket. There were no known cases to compare. I was told later there was one other a female who died before her 12th birthday.
