I am Ella, I live in Brighton in the UK, and I am a documentary film director who has bilateral PFFD. I am making a film about my experience and would love to connect with other Adults who have the same classification as myself, which is Paley Type 3B Bilaterally, and Aitken Classification D. It would be fantastic to meet people who have and haven’t had surgery. I see that there are 2 women who have written on this site; Kelly Laura who is also in the UK, and also Steph, who both sound similar to myself. I am keen to make contact with them, although they don’t seem to have been active since 2012, so any guidance in how to connect would be very appreciated. I am a member of the Facebook PFFD page so you can see my posts and photos on there.