My daughter is 7 years old with bilateral PFFD, missing balls/sockets and knee caps with short asymetrical femurs. I've been off this site for many years due to the craziness of life and hate that I did. My daugther has had hip reconstruction on her left side and one leg lenthening so far. She was also born with Arnold Chiari, which she had decompressed and a seizure disorder. I have been looking at the blogs and find them so comforting and resourceful.
