ktackett26's blog

I am in really desperate need of finding someone who has a daughter with unilateral PFFD that has already been through potty training. If anyone can give me any advice I would really appreciate it. Hope everyone is doing well.

It took about four weeks to adjust to the new leg, but she is walking on her own without holding onto anything. We have waited for this for so long.

Hi guys,
Emily is trying to walk on her own with her new prosthesis but is still struggling. I was just wondering if there was any families taht lived close to Huntington, WV that has achild with PFFD or that goes to Shriner's in Lexington, KY that we could get in touch with. Hope to hear from someone soon.

Emily is doing good. We just came back from Shriner's In Lexington KY. She was fitted a few weeks ago for a new leg and we went down to get it. She had to stay a couple of days to go through therapy because her new prosthesis has a knee and they wanted to help her learn how to control it. She is doing well with it. Sometimes it bends on accident but at least she wants to wear this one as to oppose to the straight one. I will keep everyone updated.

Emily had her surgery back in September of last year. It took about three hours and everything went great. She was in a cast until October. She was fitted for her first leg at the beginning of November and recieved it on November 31st. She goes to physical therapy every week and are awaiting the arrival of her send prosthesis. I will try to keep everyone updated and if anyone needs to talk just contact me.

Here is a couple of pictures of our baby girl and her leg. One of them is when she was born and the other is her 1 year old picture.

My daughter has unilateral pffd in her right leg. We go for surgery in september where they will remove half of her foot and put a pin in her ankle to fuse her bones together. There are no families in my area that I know of who have a child with this condition and I am just looking for someone who can tell me more or who has been throgh what I have to go through.