waylonsmom's blog

I have checked into this site hundreds of times over the past year and a half. I have read many stories and made contact with many people and was helped along this journey with PFFD. I always imagined how it would feel to announce that my baby was finally able to walk, well, it is true, MY BABY IS WALKING!!

My three and a half month old son waylon had an appointment at Shriners in Sacramento today. I met Kalyn's mom Heather on this web site who also goes to Shriners in Sacramento, so we decided to meet there today. We introduced Kalyn and Waylon and we were introduced to a little girl named Galilia who is 19 months, has pffd and is walking with the aid of a prosthesis. It was so comforting to see other moms and babies with similar issues. We were able to sit and share with each other our stories so far. I am so grateful for this web site. We joked that Kalyn and Waylon would be boyfriend an

I gave birth to a 7.5 lb. baby boy on 8-22-06. We had made it to each of our prenatal appointments and we did not suspect any thing was wrong. I had five ultrasounds to determine the location of the placenta, determine due date etc. Our doctors never found the abnormality. When our baby arrived we were shocked that there was something wrong. Our doctor had no idea what the condition could be and thats what he told us. So Josh and I sat for the next five hours with our first child, confused and scared. At 11:00 that night our doctor called us on the phone in our hospital room to report his findings via the internet.