My son was born in 2000 and diagnosed with PFFD (about 6 weeks after he was born) at Primary Children's Hospital in Salt Lake City, Utah. When he was a year old we switched doctors and started being seen at Shriners, also in SLC. We were seen every six months until he was 5 at which time it was decided that we should start lengthening. The difference between his legs was 7cm. and his femur is also bowed at the top. Well, that was one year ago and our little guy, now six, is still in a cast. He has had so many complications. His bone has broken at the spot of the osteotomy two times since the lengthening device was removed.
