gino's blog

Hi everyone.
Just a quick update as to what's happening with our little
boy Matteo.
We saw Dr Brown at BC Children's Hospital in Vancouver last week and
also spoke with several children/families that are going thru leg lengthening procedures. That's one of the options that we had on our plate prior to the appointment. The other was amputation of both feet (Symes?). With the amount of time that is required for the leg lengthening, and still not be able to use his feet due to his ankles being fused, Matteo would lose most of his childhood being in a "Lizzy" frame. Basically he would need 4 operations per leg. Something we as parents don't want him to have-- (mostly because his feet would still be non-weight bearing.)

Hi Everyone.
We are parents of a new born who was born with bilateral hememelia. 3 digits on right foot, and 2 on left. The right foot has a heel bone, the left does not at this point.
We are going to BC Childrens hospital in a few weeks to speak with a specialist about long term forcasts, possible amputations etc etc...
Knees and hips are normal.
There isn't alot of information or support out there, so please, if you can help out, any information would be greatly appreaciated. Send your email and I will respond.
thanks Gino/Katherine