chapelhilldevil's blog

I just wanted everyone to know that there is a new book out there entitled "Poster Child". It was written by a woman who had unilateral PFFD and was the poster child for the March of Dimes in the 70s. She went to Harvard and was a Fulbright scholar - and is obviously a VERY high achiever!
It is very interesting ... though I have to remind myself that a lot has changed since she was undergoing treatment.

My daughter, Casey, is two months old and has unilateral PFFD, class D. She has a foot, tibia and fibula. We are just beginning her treatment odyssey and would love to hear physician recommendations. So far our "home" orthopedic surgeon is Dr. Fitch at Duke. He has a wonderful pediatric reputation and is VERY well respected at Duke. In addition, we will be going to Shriners Hospital in Greenville, SC next week. We would like to see two other doctors before we begin her treatment path. I don't believe that lengthening is an option for Casey.