My son who is 4 and 1/2 months old was born with missing fibula bone.we are still in the boat of deciding what is good for him...all the doc's we have seen so far has said amputation is better because the difference is too huge between two legs and his ankle bones are absent.
I am also visiting Dr hezenberg next month to discuss about his opinion on limb lengthning.
meanwhile on my research regarding amputation,I came to know about the Phantom pain,but do the kids who get the legs amputated at age of 12 = 16 months also have that pain...
