My son isaiah was born on April 14th. He was 5 weeks early but he is doing great. He was born with unilateral pffd. He is completely absent his left femur, nor does he have a knee. I don't believe that lengthing in going to be an option. He is going for his evaluation at Shrinners in Chicago on July 13th. My hope is for Van Ness rotation and hip reconstruction. Then amputate the toes making the ankle a knee. Then Isaiah will be able to wear a prothsetic from knee down. I am open to any suggestions, ideas, feedback, ect. Thank you for anything you might have to say.
