I am a 37 year old female with PFFD. At age 5, I had the Van Ness Rotation and hip reconstruction at 5 and 7. The last time I saw the DR that did my surgeries was age 11, and until recently I really never had a doctor that didn't have to look up PFFD in the medical books. My current doctor is very familar with PFFD's and Van Ness. Recently I went to him with questions, but came away feeling let down. I guess the big question is what can I expect in the future as I get older?