Hi ~ I just wanted to give some info on my son Jared that was born with PFFD. He is 16 years old now and doing great. We had a symes amputation when he was 9 months old and his femur fused to his pelvis when he was 6 years old. I don't recommened the fusion but the amputation has worked out great. If anyone has any questions please don't hesitate to ask.
