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Joana Bonura's blog

So Many Questions

Our baby girl, Nicholette, was born in 2003. She is diagnosed with Fibular Hemimelia. We are seeing Dr. Widman in NYC who said that the solution will be a leg lengthening. We do not have a lot of information about this topic. If you have any insight or if you have any experience in this matter please contact us. As of right now she is predicted to have about a 10cm discrepancy. They are saying one operation definitely but maybe 2. Nicholette’s ankle needs support so we are always looking for high-top shoes to give her more support. She has not been put in a brace at this time. The docs still want to wait for that.

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