littlerufa's blog

My PFFD affects only my left leg. Unfortunately though, I have no knee. Right now I'm about two inches short. Can anyone in a similar position drive a stick? If you can, is it overly difficult for you? How exactly do you do it? Thanks.

I was just curious to see if anyone else that has undergone limb lenghtening is suffering from chronic pain? I'm only sixteen, but ive had about thirty surgeries. I had the Phoenix implant. Two of them actually, as the first failed. The Phoenix is an internal prosthetic which lenghthens via magnet. Anyway, i remain in constant, aching pain. Has anyone else whose undergone limb lenghtening, or any other procedure, suffered from such pain? how do you deal with it?

Hi,
I'm just curious to see what those who have had the rotation plasty done think about it. I'm sixteen, and we've run into several complications, and I'm now leaning towards the procedure. So what's it like? Do you limp very much? How active can you be? What do other people think? Can it get painful? What's it like to have to wear a prosthetic every day? Any insight you can give me into your condition of living would be HIGHLY appreciated. Thank You.
-Zach

My name is Zachery, and I'm almost sixteen years old. I've lenghtened since I was two, but recently, I've run into severe problems. My femur was removed years ago to make room for a prosthetic that didn't work. Paley assumed we would be able to put in another prosthetic, but for that to MAYBE work I'll need bone graphs. I also have a fixator(that's loosening and falling apart) that's been on for over a year, that can't be removed until the prosthetic goes in in at least two months. I wonder, is it worth. I'm considering a whole leg amputation for once in my life.