Hello there, my name is Patrick Stewart and I have upper PFFD. I know that the condition is not genetic since no one else in my family has ever been diagnosed. Recently though, I have discovered that my girlfriend is now 8 weeks pregnant and I am extremely concerned that this will be passed on to my now unborn child. Please someone let me know your thoughts and feelings. If anyone is out there with PFFD and has had a child, PLEASE let me know if they were born with or with out our condition.