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sunshine929's blog

This whole experience has been awesome for me

The last three weeks (since the People article on Lilly and Maya) have been quite exciting for me. To learn what my condition (no longer called a disability) really is called and to know that there are so many people who either have, or have children that have PFFD, has made me feel much more complete and much more at peace with myself than I ever have before. Actually emailing and talking to Lilly and Maya's Moms has brought me to a point of unbelievable respect and admiration for my own parents, who have died.

I have PFFD

My sister just sent me the article in the July 21 issue of People Magazine regarding Maya Albert and Lilly Stiernagle. I am 56 years old and have lived with PFFD my entire life -- when I was born the doctors told my parents I would not live, then that I would not walk and the best thing that my parents could do was to put me in an institution and forget about me. Obviously they did not! I have been married for 30 years, have a 24 year old son who is 6' 4" tall and I use NO prosthetics at all--other than a wheelchair for "long" jaunts -- like to a Super WalMart or the mall.

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