My name is Gabrielle and my grandson has PFFD. He will be 11 yrs old this year and is in the fifth grade. At first it was hard to deal with because he was also born with Pierre Robin Synodome. But we have all adjust quite well now. He is very active. He run every year in the Akron Kids Marathon which is 1 mile. The only thing right now is he want to ride a bike and we have yet to figure how he can do this. I read the article in People Magazine about Lily and Maya and how there parent have had to make adjustment for them which we have had to do also.
