Wow. I am kinda overwhelmed by finding this site! I never knew the name of my condition before my husband brought home the People article about PFFD, much less that there were so many other people with the same thing.
I am 30 years old with, I guess, bilateral PFFD. My right leg does have a kneecap and a very short femur. I only had one surgery when I was 8 to remove part of the growth plate in my right knee so that leg wouldn't grow TOO much faster than the left (where there is no joint or femur).
