I am new to this site. I am a 64 year old married woman and because I have no computer, my niece is doing the handywork for me. I am hoping to find someone to correspond with who also has bilateral PFFD and who is close to my age to exchange ideas. I am so glad to have found this site and look forward to hearing from new friends. I also am here to tell all of those families with PFFD that one my age is still going strong and been blessed with an extremely happy and fulfilled life.
harrist