We are new to this sight, and very happy to have found it, we are in the process of adopting Alena, she has severe bilateral PFFD. She has no hips femurs or knees. She has had surgery to correct bilateral club feet, and had surgery to fuse a partial knee tht was in the hip area. She uses an electric wheel chair for school and outings, can stand, but walking is very difficult, she is very heavy set, runs around on all fours, has the cutest skip, and stands on her head.
