If you are new to PFFD - I recommend starting with the PFFD book

Paul B Tomaino (pibit)

I celebrated my 90th birthday yesterday. Thought I would share this with other PFFDs. I am still quite active, live alone, able to drive and can still play a strong game of chess. The best advise I can give is always remember it's the ability NOT the disability that counts. Keep a close relationship with the Lord as He is always there to help and protect you.

Ella

I am Ella, I live in Brighton in the UK, and I am a documentary film director who has bilateral PFFD. I am making a film about my experience and would love to connect with other Adults who have the same classification as myself, which is Paley Type 3B Bilaterally, and Aitken Classification D. It would be fantastic to meet people who have and haven’t had surgery. I see that there are 2 women who have written on this site; Kelly Laura who is also in the UK, and also Steph, who both sound similar to myself.

Looking to meet other people with bilateral PFFD

I am Ella, I live in Brighton in the UK, and I am a documentary film director who has bilateral PFFD. I am making a film about my experience and would love to connect with other Adults who have the same classification as myself, which is Paley Type 3B Bilaterally, and Aitken Classification D. It would be fantastic to meet people who have and haven’t had surgery. I see that there are 2 women who have written on this site; Kelly Laura who is also in the UK, and also Steph, who both sound similar to myself.

89th birthday

I just turned 89 and am looking forward to my 90th.

History of PFFD

Does anyone know when the first case of PFFD was discovered?

88th Birthday

I just celebrated my 88th birthday. I am still quite active. I am permanently wheelchair bound but as long as I can still drive and get around that is all that counts!!

Amputation

Hi, seeking advice. My daughter has PFFD. We chose not to amputate her foot, deciding that she could make that choice on her own. She is 13 now, and is considering it...I'm am wondering if anyone has experience with this and can give insight on what to expect in regard to recovery, phantom pain, mobility, etc. thank you!

Prosthesis

I am 32 years old and have pffd, had Symes procedure at age 3 and have worn a prosthesis ever since. I am a nurse, very active person but here recently I have had problems with finding soneone to make me the appropriate prosthesis. I currently have the C leg. Anyone with any suggestions.

Relationships

Hello people,

My Life as a PFFD

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