In case anyone is still checking in here, just a reminder that there is an online chat this week on chatzy.com on the topic of congenital limb differences, which includes Congenital Femoral Deficiency (sometimes known as PFFD). Great opportunity to ask very experienced limb differences surgeons questions about lengthening, deformity correction etc. Also a good way to meet other families and chat with them.
Please contact icll@lifebridgehealth.org for log in information.