33 yr old with pffd

Hello, I'm a 33 yr old woman that had bilateral pffd. I would like to hear from others with my condition as I know it's extremely rare.
I havent had any surgery and I had a healthy baby boy in 2007

I work as a nursery nurse and don't let my condition affect me, although am currently on the waiting list for an arthroscopy as having pain in my left knee... I'm very uncertain of what the future will bring and would love to hear from people in a similar situation Xx