I'm not sure how many people are still reading here, but just in case - there is an online chat on Congenital Limb Differences (including CFD/PFFD) on Thursday Sept 13 at 8 PM eastern US time. One or more doctors from the International Center for Limb Lengthening host these about once a month and are available to answer questions. You do not have to be one of their patients to participate. For more info, contact: icll@lifebridgehealth.org