Being able to walk, run, hop and scoot is all he cares about

Six years ago, I have never imagined having a child that would rip my heart off. All I wanted was to have another healthy sibling as my first one was growing with no one to play with. Joseph was born with fibular hemimelia, abnormal foot, abnormally deformed hand with ectrodactyly,and a congenital absence of his right lower extremity. I thought the whole world has turned around against us to deserve this. We took him wholeheartedly and promised to love him unconditionally despite with what he only has and we do not have regrets. He is the most promising child we would ever wanted. Bombarded with therapies since a month old, he never complained. More x-rays have confirmed that he is also a significant bilateral PFFD type D( no hip sockets developed). Dr. Jay from AI Dupont Children's Hospital in DE had the most promising conservative management of care that kept us going back for more future care. BJ, as we call Joseph, has a prosthesis that allows him to ambulate with his reverse walker and loftstrand crutches. He learned to walk,run and hop with his walker, kept up with his classmates, and amazed his therapist when he scooted down the ramp in the therapy clinic. He is a very active little boy with nothing else set in his mind that he can do everything his sister does.
For better weightbearing as well as better prothetic fit, he is scheduled to have symes amputation this fall, an invasive procedure that we are just learning about.