I was born with pffd in 1952.When I was a child doctors said that what I was born with was very rare and at that time there wasn't a name for it.When i'd be on my left knee the right foot would be flat on the floor.I had my foot amutated and they tried to strighten my femur that was bent and short but it didn't work. My knee on the pffd side as alwas been bent but when I was a child I could move it some but as I got older the knee fused its self together and my deformed hip has fused its self together.I don't know if this has anything to do with having pffd but so that you all will be on the look out I was also born with out my uterus and vagina (some thing else that's rare).I've lead a pretty normal life.Some one had asked on the site if any one with pffd was short I'm 4'11. my e-mail address is camptalk@hotmail.com.I'm a camphost for the corps of engineers
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How rare is PFFD now?
When I was born in 1952 I was told that this was very rare with only me and another girl in north Texas with it, they didn't even have a name for it then. Is it still rare? I was never told what classifction I was but I've been told by the man that made my artifical limb that out of 19 PFFD patients I was the worse he'd seen.