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Our Hero Jacob

Our son Jacob has PFFD Type B. He has had 3 superhip surgeries over the last five years, peformed by Dr. Paley at the Rubin Institute for Limb Lengthening in Baltimore Maryland to stabilize his hip. Jacob recently had his first lengthening surgery performed by Dr. Paley on June 15th 2007. Jacob is now recovering well and he is having physical therapy at the Rubin Institute's therapy department. Jacob was born with a hip that was not fully formed and a very short femur. Dr. Paley was the only doctor that would and could help our son to correct his hip first. Other doctors would only recommend amputation. Jacob has a good knee, lower leg and foot so we were determine to fight and give Jacob every opportunity to have two long legs. It has beed quite a journey with surgeries at aged 2,3 and 5 years of age and now his first lenghthening at aged 6. Right now we are making a documentary of our son's first lengthening to help educate other parents of what to expect during the pre and post surgery, surgery and physical therapy. Jacob's story is at web site: ourherojacob.com May God bless and watch over our children, abd our friends and loved ones who have any form of PFFD. Feel free to ask me any questions relating to the Type B hip or the lengthening procedure. Blessings, Rachel.

Comments

Hi, Rachel. I just visited your site. Jacob's quite cute!

I have a question about something that I read. You state that PFFD affects 1 in 300 births. Where did you get that statistic? I was always under the impression that it was a much rarer condition than that.

Just curious,
Linda
Bilateral PFFD

Frequency: The incidence of the deficiency ranges from 1 case per 50,000 population to 1 case per 200,000 population (Oppenheim, 1998).

Hi, Leatta! Thanks a lot for posting that stat. I thought that was more like it.

I have changed the stat.

The error has been corrected!

I know it is 300,000. Thank you for seeing the error.

Wow Im so happy that Jacob is doing so well through all of his surgeries. and thank you so much for posting your experiences on the blog and on his website its really helpful and encouraging.

I hope Romie is doing well. How did the surgery go?