The last time I posted, we were still looking at treatment options for my son Kinnick, who is unilateral PFFD in his left leg, with a good hip, very short femur, and absent fibula. That was over a year ago.
Well, we have since chosen a Symes amputation and prosthetic for Kinnick. He had surgery the week of his first birthday in March at Shriners Hospital in Minneapolis, MN. He got his prosthetic in the middle of April. He started walking a few weeks ago right at 16 months! We are so proud of him and are amazed by his progess everyday!
I was really inspired by the article in People's Magazine and am amazed at all the new posts on this site! I also think a conference would be a great idea, and I would be willing to help in whatever way I can!
If anyone is interested in seeing Kinnick or his progress, you can check out his website at http://www.caringbridge.org/visit/kinnickvanginkel
Comments
Congratulations! It sounds
Congratulations! It sounds like Kinnick's PFFD is very similar to my daughter, Jillian's. She was 1 in April. She has unilateral PFFD with a short femur and an absent fibula in her left leg as well. She also has a good, stable hip - thanks to 6 weeks spent in a Spica cast last summer. her leg length discrepancy isn't large, so our orthopaedic doctor just has her wearing a support on her left leg to stabilize the ankle joint, and she is walking with help/holding on to hands and objects. I can't wait for her to start doing it on her own - I swear PFFD parents are the only ones who actually encourage and wish for movement so much!! If you ever want to chat - feel free to e-mail me Swinford723@comcast.net I'm so happy for you and for Kinnick!
GOOD JOB!
Way to go! I'm sure there's nothing to stop him!