Hi everyone!
I'm new to this site, I have a niece that has similar disorders as some here on this site. She is three years old, born with short legs, no knees, just had her trache removed and soon to have her g-tube removed. She was born with a cleft palate and one of her arms cannot bend. My sister never had a diagnosis for her daughter, doctors made it seem like it was something normal. However, doctor's also said that she would never be able to walk or talk. That is what she does the most today! After searching google, I found this website and I was amazed to learn more each day. She is such a precious girl, but to learn more about others with the same type of disorder, that does amazing things brings such joy for us. I don't know much yet about this site but as soon as I get use to it, I will post pictures of her.