Hi This is ruairi's mum ruairi was born in 2000 with PFFD and to date has had no surgery , wears a extension prothesis and we are discussing with his doctor the van ness procedure. We would like some information on this from anyone ?
An informational summary is available at this site at http://www.pffd.org/node/93
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An informational summary is available at this site at http://www.pffd.org/node/93