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MY JOURNEY WITH PFFD

My name is mwazhi my parents found out that i was diagnosed with PFFD at the age of one year ,eight months.They did not know much about it in fact they were told i a had a short hip disease.
My growing up was stressful and challenging i faced rejection from people around me including some of my close relations.My mother was my source of encouragement she motivated me to go out there and be me.She taught me the importance of self acceptance an self confidence,with that the people around me accepted me as i am.
I have being using an ortho-prosthesis for 17 years now recently i have an ortho prosthesis that enables me to fold which has been a great development to me.Now that am going in the field of orthotics and prosthetics i want develop better appliances for people like my self.
Of late i have been experiencing pain in the hip joint of my affected leg after taking an x-ray i found out that there is a fixed joint on my hip joint and the hip is shaped in a seven form. Can any one advise me about what i can do about my pain? its really worrying me.

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my wife has Short femur in her scanned report,she is carrying 22 weeks now.How to overcome or what will we do? please give details.