jessica's blog

I have had quit a bit of lengthening done and during the last one, my knee dislocated. Has anyone had this happen? The doctors were able to put my knee back into place but over time it's slid backwards again. I'm too old to see my doctor at Shriners that have done all of my surgeries, and every doctor I've gone to since doesn't really know what to do with me. I can't get a knee replacement or anything. Anyone had this problem??

My name's Jessy and I'm 21. I have PFFD in my right leg and I wear a brace, and use crutches. Until I was 7 I wore an extension Prosthesis. Then I had my first lengthening. I just remember my knee being stuck bent for 6 months mostly (because the muscles were so tight), and I spent a lot of the time in the hospital doing physical therapy. I don't remember exactly how much length I got each time I wore the Ilizarov, but my mom told me that altogether I've gotten 13 inches from the 4 lengthenings I've had.