Encouragement, support, and love are what a child need when he feels different with other children.
1. WHAT MAKES ME DIFFERENT?
You are physically different because, one part of your body did not developed. Even you are born abnormal, God knows you can be strong and special that you will be a good example to people with different life too.
2. WHEN WILL MY LIFE BE NORMAL?
You are normal in everything. You have feeling like the others. You can see all the beautiful things around us. You can hear your favorite song. You can speak what is in your mind. Lastly, you can taste the food you want.
3. WHO ARE PEOPLE LIKE ME?
You are not the person with so many differences or deformities. There are people whose blind and cannot see even their own image, or even their parents and friends. They are the most challenged person in this world.
4. WHY I AM BORN NOT COMPLETE?
There are a purpose in your life and you are chosen to be unique in God"s Heart.
5. HOW WILL I LIVE?
Life is so beautiful, love God above all and your neighbor. Be happy and live a normal life even your different from others.
My son asked me so many questions and its really hard to answer, but he best part is God love us and we are still alive.
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How I felt when my third child with PFFD
All parents aims their children would always be best in everything. My first child Jennie were always number one in her class, and being the parents all praises are we acknowledged because, we got an talented daughter. My second child Michael gave us a grandchild whose so cute as another little angel in the family. My third child and the youngest Ian Gabriel was born physically challenged. When the doctor told us so many deformities in his appearance, I wonder and asked God , Why me for all the millions parents that we got a child with PFFD. The doctor said that my son ears are too big. He got no neck. His lip is too short and tangue too. and he got short left leg and also there is a problem in the hip. I imagine that my son looks like a monster. I am in my late forty"s when I concieved him and my menopousal stage.
Now I have realized that its also a challenged to us parents to love him more, because his a special angel in our life. I think when we die, God can easily know us because we got a special child with PFFD.
In my country there no support and the government are not giving more support in our case. I hope one day we can let our child be a normal child. His wearing a prosthetic. I can always say we are all special to God and thank you for this website that are giving information and sharing stories and experiences with other PFFD.