Sponsoring

My grand-daughter Malgosia is 3,5 years old. We live in Poland,
Bialystok. She is born with a right congenital femoral deficiency
Paley type 1 B. Thanks to God we found Dr Dror Paley, who examined
Malgosia and qualified her for treatment with 98% chances for
recovery. 1 reconstruction and 4 lengthening surgeries are planed.
Please find analysis and recommendations from Dr Paley below.

Costs are very high. Could anybody share his experience in acquiring
sponsor to finance the surgeries to be performed in St.Mary's Medical
Center in Palm Beach http://www.lengthening.us/contact_me.html ?

Thank you for response.

Dr Dror Paley: "She is born with a right congenital femoral deficiency
Paley type 1 B. On reviewing her x-rays, she has beautiful evidence
of delayed ossification of the femur, which has progressed from a
complete delay of ossification from the mid femur up to demonstrate
full ossification of the femoral neck, head, proximal femur, and a
subtrochanteric residual delayed ossification line. She has marked
external rotation and valgus appearance to the femur on the x-ray
provided an complete fibular hemimelia below the knee. There is no
x-ray with her femur internally rotated to see if there is any neck
shaft angle other than the valgus seen on the lateral view.
Clinically, she has excellent knee motion in flexion to 135 degrees
and lax to above 30 degrees from full extension, which is also
demonstrated radiographically. She has some valgus instability of the
ankle but has excellent range of motion of the ankle and no evidence
of fixed equina valgus. She wears an AFO with a hinge of the ankle
and a 16 cm shoe lift. According to her parents, she has a 16 cm
discrepancy presently and was born with about 11 cm difference. If
the 16 cm discrepancy is accurate in accurate measurement, then given
that she is three, her predicted discrepancy at maturity will be about
32 cm.

This girl has an excellent functioning hip, knee, and ankle and is
completely constructable. However, the reconstruction plan has to be
effected very precisely and by someone extremely experienced with
lengthening of congenital femoral deficiency. There has to be a very
aggressive rehabilitation program in order to achieve the plan that I
will outline below. At present, I am unaware of any such
rehabilitation program or sufficient experience in Poland to handle
the type of reconstruction that I am describing. My clinic treats
patients from all over the world and I have had the privilege of
treating over 500 patients with congenital femoral deficiency with a
98% success rate."