Kalyn's Latest Visit to Shriners

Hello Everyone,

We took Kalyn this last week to Shriners for her 6 month checkup. They stated that she is consitered Class A PFFD and Fibular Hemimelia in both legs. They stated that she is not a canidate for bracing. They stated that when she beginns to walk that they will give her a shoe lift becuase they are expecting approx a 4 inch leg discrepency between her left and right legs. They will be recommending leg legnthing around 7 years of age. If they do not see the results that they are looking for after awhile of legnthing they will recommend amputation from the thigh down on her left leg to give her the lift that she will need to walk.

I am finally comming to terms with her PFFD. I heard an amazing quote from a two girls that had two heads and one body. They stated "Our differences dont define us and they dont confine us". This blew me out of the water. For some reason this hit home with me and now I have finally came to to the conclusion to stop just looking at my baby and thinking what can I do to make her better...now I look at her and only think how amazing that she is.

Heather