Hello! I've posted on this web site before. I am now 55 and would like to know if anyone out there with PFFD is older than me. When I was born in Texas my parents were told that me and a girl from Dallas were the only ones in Texas at the time born with this deformity, but thay didn't have a name for it then and I still come across doctors that don't know much about it.
70's, but not me
On the old PFFD site there was a lady in her 70s....I wish I could remember specifics, but I don't think she had any treatment until adulthood and it was for her hip. She was unilateral and I think Class C. Maybe someone else remembers her.....
I may be the one.
Yes I posted way back when. I will be 75 soon. I posted once again today but I not sure the posts are getting sent. Anyway. you are right, I am a class D PFFD that remains in great health.
lmf
d
d
1954
There is Cindy Hammond on this site who was born in 1954......I bet she loves it announced as such. :) You can read her comments to lindamo's blog and it has specifics.
Maybe her?
I found this in the 2002 guestbook. It may be the lady in her 70's.
Comments: I AM AN OLDER PFFD WHO HAS HAD FEW DIFFICULTIES
LIVING A VERY NORMAL LIFE. I ALSO HAVE A MEDICAL BACKGROUND AND WAS A THERAPIST
FOR 45 YEARS. I WOULD BE GLAD TO ANSWER ANY QUESTIONS OR JUST COMMUNICATE
WITH ANYONE INTERESTED IN PFFD.
Visitor: Sybil Ginn
Reference: Searching
Location:
WebSite:
Web Info:
Contact: ginnsurfer@statecom.net
Date: Sun, Mar 03, 2002 at 09:22:46 (EST)
Sybil, 70' My and I thought
Sybil, 70' My and I thought I might be the oldest one! I'd like to meet some of the people with PFFD some time.
I am back
I haven't been on the site for awhile. I am the person. I am still active and in best of health. Just too busy to spend much time on the computer. I have five children.15 grandchildren and 3 great grandchildren that keep me busy. I also have 4 "children" with 4 paws that require my daily attention. Have a grest day.
lmf
Texas
I am not older than you but I find it interesting that you are from Texas. I am from Texas and I lived about 100 miles northeast of Dallas. I am 35 so I maynot be the old one in Texas but it is good to know your out there.
PFFD in Texas
Shellamar
hello! I just checked this site for the first time in awhile.My mother has been sick for the last 4 years with cancer and I've been staying a lot with her. She passed away in June and I have been lost with out her. But I was glad to see your post! I went to Dallas to Hedgecock to get my artificial leg made. I now have to wear a liner because my stump has come up so high and the knee locked and doesn't move anymore.I wish they had this site when i was growing up it was like I was the only one born like this even the doctors didn't know much about it. let me hear from you.Viola
I may be the oldest PFFD
I am new to this. I posted this message on my blog thinking it would get here... Soooo, I'll just copy to this site!!
I believe I may be the oldest PFFD and that most of the original work was done on me at the Children’s Hospital , Boston (Brookline), MA (now known as the Children’s Medical Center) under Dr William T Green who was Chief Orthopedic Surgeon of the Children’s Hospital and full professor in Orthopedic surgery at Harvard Medical School. His pup and protégé was Dr David Grice.
I was diagnosed (in 1931) as, in those days, a Congenital Absence of the proximal 2/3 of the femur and acetabulum, acute (today known as a PFFD). There was a girl with a similar diagnosis but she died at age 12.
In 1942 I went through an ilio-femoral fusion where the femur was placed in 30 degrees flexion and 10 degrees abduction. My “sloppy” knee was to be used as a hip! In 1944 I went through a graft reinforcement to the femur. Because little was known I had to wait until complete ossification of the bones before further work could be done. So in 1951, 52 and 53 I went through a series of surgery preparing me for a conventional prosethis after a Symes amputation in 1953 at age 22. [My graduation present from Boston University.] Prior to this I walked with a platform brace. It took a lot of searching to find a limb company to handle this because of my short stump. Finally they located a Mr. Martino at the Boston Limb Manufacture who said he could make one. He did and I have been using a conventional prosthesis now for 54 years and counting.
In 1983 my only hip went so I have been equipped with an artificial hip (left hip) prosthesis. I also believe according to Dr Flynn who did this that I may be the first ‘one-legged’ person with an artificial hip.
I have also led a relatively normal life.
That’s about it! I would appreciate hearing from any one about this.
Oldest PFFD
My Dad lived was almost 89 when he passed away. It wasn't until after his death that we even learned the name for his limb difference. He grew up in Chicago, and never met anyone in his lifetime that shared the problem. He wore a protheses, started using a cane in mid-60's and a walker in his mid-80s. He had arthritis in his hands, but never in his affected hip or leg. His leg and hip were still functioning at the time of his death, although for the last few months of his life he relied on a wheelshair, due to vision and other health problems.
pffd
Hello--I am 57 years old and have pffd. I was born in Philadelphia and my parents were actually told that this disability was called femoral hypoplasia. Until the article in People Magazine last year, I always thought the same thing. It was an interesting experience to find out what the actual name of this is.
I have been married for 31 years and have a 25 year old son, who does not have pffd. I live an extremely active and completely unemcumbered life--in fact, my life is really quite blessed. PFFD really has not caused me any difficulties at all.
If you are interested, I would love to hear from you.
Sheila McLaughlin