You are here

club foot and also PFFD

Is thers any one out there that has a child with pffd and club foot? If so could you please contact me as i would really love to hear from you,

We are thinking about going to America to America to see Dror Paley, and would like to know what we are in for also we have been told we can get her a prostesis that wont need surgery or one that will need surgery, we just really dont know what option to go for, Caoimhe is 21 months at the moment.

Comments

We were in dun laoighre today getting the casting done for our daughters right leg, as we are still trying to decide about the leg lenghtening as we are from Ireland and no one here will do this procedure. Today when i asked what kind of a prosthesic she was getting and they just said an extension one as she already has her foot pointing downwards, does anyon know what this is or is there anything else we could consider?

hi when we were going the through decision process we went to ids in cappagh hospital .they went through to whole process with us but advised us to lenghten and gave shoe lifts for roberts leg .we eventually came around to lenghtening after checking all other avenues. its a really tough process but well worth it in long term . we also attended sean boylan,s clinic in dunboyne and got herbs to help roberts circulation and he recieved amatsu physio .that really helped so much . we came in at the clinic with another family going through the same as us .they also attend mr moore,s clinic in crumlin . out side of that we bring robert to hydro therapy. it really is a tough path. all i can say take your time and explore all avenues and the decision will come.

We were sent to Dun Laoighre, how would i go about contacting the ids in cappagh or would we have to be sent there by a doctor? We were with Dr Paley he said he wold be happy to assist to Caoimhe, she would ned super hip and super knee surgery first then 3 lenghtenings after that starting at age 4.

For club feet I think the treatment these days (2008) is the Ponseti Method. http://www.uihealthcare.com/topics/medicaldepartments/orthopaedics/clubf...