Hey all its been a while shanes almost 3 and growing like a weed!!! He has been aproved for SSI now but not for his PFFD but for speech issues (stupid SSI People) we have an appointment in Charleston again to get his leg checked out he has a 1 1/2 inch shoe lift added to his left shoe which is helping out less falling but he has a small contracture starting in the back of his legs from walking wrong for the last year befor the shoe lift but atleast now with him Getting SSI we can afford the shoe lifts and get him back down to charleston for check ups would still like to get him into see dr paley in flordia but not sure if we can manage that but happy with dr mooney in charleston as long as hes not going to cut my sons perfect piggys off and can do the leg lengthing surgery later on were good even though paley has more experience Mooney has had a good track record too :) you can look me up on facebook under tara brantley if you'd like to chat