I am a 37 year old female with PFFD. At age 5, I had the Van Ness Rotation and hip reconstruction at 5 and 7. The last time I saw the DR that did my surgeries was age 11, and until recently I really never had a doctor that didn't have to look up PFFD in the medical books. My current doctor is very familar with PFFD's and Van Ness. Recently I went to him with questions, but came away feeling let down. I guess the big question is what can I expect in the future as I get older? The older I get the more my leg rotates in as I walk; I have major muscle cramping in the thigh of my affected leg; the current prosthesis I have, tried to adjust for the inward rotation as I walk but I fear that I may be causing the cramping muscles.....Has anyone else experienced any of these? Does anyone have any insight to what I may expect (knowing everyone is different and what will work for one may not for the other)?
Comments
Your not alone on that Question
You are about the 7th adult to share almost the exact same experience. I am 34 and feel like I educate my doctor and direct my own care related to my hip and leg. As far as I (and other I have talked to) there is NO aging research or non-pediatric guru.
I have SERIOUS concerns about aging and bone density (especially since I am not weight bearing and my last surgery as a teen did not heal...the Shriner’s left me without a medical referral or working prosthesis and let me know I was too old for them). My metal hardware shifts and stabilizes regularly and pain management is sometimes difficult. It is VERY hard to find an orthopedic doctor who feels comfortable treating me after 22 surgeries and one unhealed one, especially when I explain that one of my goals would be to wear a prosthesis again.
If you find a PFFD guru, then be sure to let us all know. Thanks for sharing.
Hi
I'm sixteen and I was wondering can it be done on teenagers? I haven't done anything to address it.