I have checked into this site hundreds of times over the past year and a half. I have read many stories and made contact with many people and was helped along this journey with PFFD. I always imagined how it would feel to announce that my baby was finally able to walk, well, it is true, MY BABY IS WALKING!! Waylon had a Symes amputation in July and was fitted with an AK prosthesis in October. He has been taking stumbling steps between me and his dad for about a month but this weekend he just got the hang of it. He is now able to walk on his own. Our entire family is so proud of him and I am so relieved to be at this point, finally!!! I remember many very hard days where I did not know what we were going to decide to do and days where I was so scared of the decisions I had made. I would cross the spot in his babybook that said "first steps" and I would dream of the day I could fill this spot in. Right after my son was born and I had posted my story on this site, someone wrote to me and said "it will get easier" It is so true!! I just wanted to announce my great news and say thank you to all of the wonderful supportive people out there, and thank God for this site!! Thanks, Kathy
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Comments
Way to go Waylon
Congratulations! These children are so amazing in what they learn to do. Learning to walk is challenging enough, but with a prosthetic, just leaves me in awe. Enjoy this extra special time.
Cody's mom
Your Story gives me hope!!
First I would like to tell you that your son is very cute. I am new to the wesite but your story sounds alot like mine. I gave birth to a beautiful boy 11/2007. Shortly after he was born the doctor new something was wrong but had never seen this before. The next day we found out he has severe pffd of the left leg. We come from a very small town so we are still searching for answers and resources to help us. I have the exact same questions as you did. How did you make a decision or I guess, what were the options they gave you? I don't know where to start and feel very overwhelmed. I am very happy to have found someone who is close in age to my son. Waylon is adorable and I am very excited for you!!
congrats!
your boy is adorable. he will treasure those pictures when he is an adult. i'm 31 with bilateral pffd and i have been wearing an above knee prosthesis around 18 months. i have pictures of me when i was started standing and walking and i cherish them.