There is a new procedure (2000) that the inventors are calling the "Super Hip." A technical description was written for doctors in the article Lengthening Reconstruction Surgery for Congenital Femoral Deficiency.
For us non-doctors - the procedure as I understand it - is to try to surgically correct all the issues that arise at the hip (contracture, bent bones, etc) in one surgery. This is a new procedure and long-term studies (20 years) do not exist. Please do though contact pffdvsg-mike or rar and we'll update these pages with some links to stories or the stories themselves.
Some issues that are of concern are diapers and cast care. Several parents have written about it here
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