I'm really getting very frustrated as i'm trying my best to find a fundraiser who will be able to assist me in raising funds for Olivia's upcoming surgery, but no one seems to be qualified or have done anything like this before here in South Africa.
I really need to raise the money quickly and time is running out.
Just a quick reminder that Dr. Standard, and often accompanied by Dr. Herzenberg, is conducting his regular chat on Thursday, March 11. The chats all start at 9:15PM EST (yes, night time, in order to allow familes to get home from work).
If you have never participated, or forgot the information, please contact me at vbrady (at) lifebridgehealth.org . And just a reminder that the doctors don't "push" lengthening at the chats. They are happy to talk about any treatments, but if you are interested in finding out about lengthening this is a good way to pick some very experienced brains.
Hi. My name is Aeryn and I'm 22 years old. I have been in a committed relationship for 2 years now and though I am not getting married or having children anytime soon I was wondering if anyone could give me information on the genetic ties of PFFD. I was born with PFFD in 1987, had four leg lengthening procedures, countless surgeries and my legs are the same length (as of July 2007). I have always been very scared that I will pass on PFFD to my children and have thus always wanted to adopt instead of taking the risk.
Just a quick reminder that there is another limb length discrepancy chat this week. We usually have a number of families with CFD participating, if you want to "pick" their brains. For further details see the previous post which includes contact info.
My 2 year old son Daniel just had the Superhip 2 surgery in January with Dr Paley. We regularly update a blog about Daniel and I have recently posted a detailed entry about our experience that I thought might be useful for those families who are thinking of or embarking on this journey. Please feel free to contact me. The blog can be found at www.danielrigby.blogspot.com.
My grand-daughter Malgosia is 3,5 years old. We live in Poland,
Bialystok. She is born with a right congenital femoral deficiency
Paley type 1 B. Thanks to God we found Dr Dror Paley, who examined
Malgosia and qualified her for treatment with 98% chances for
recovery. 1 reconstruction and 4 lengthening surgeries are planed.
Please find analysis and recommendations from Dr Paley below.
Costs are very high. Could anybody share his experience in acquiring
sponsor to finance the surgeries to be performed in St.Mary's Medical
Hi everyone. My daughter Madi is 16 months old and has pffd in her right leg. She is scheduled to have Superhip surgery with Dr. Paley in October. It has been so great to hear other peoples stories and know that you are not alone. Madi does pretty well so far. She has a 7cm lift and an AFO brace to stabilize her ankle. So far she really doesn't walk much. She has taken a few steps but really doesn't seem interested. We first met Dr. Paley on August and we were so impressed. Every other Doctor we had talked to told us that there was nothing that they could do. Dr.
