I am the mother of a beautiful baby girl residing in Lucknow in India. I am looking for parents of children who have pffd in India so that we can communicate and share our stories. If feasible we will try and arrange for our kids to meet as it wud be good for them to interact with one another and realize that they are not the only ones who are differently abled.
Please feel free to mail me on:
Hi! iI am a proud mother of Kashvi, my 28 months old daughter who has pffd in her right leg. She was fitted with a prosthesis in April 2006. She has started walking but not yet independently.......... at times i feel this is slow development , but i do not want to push too hard. As i am working i practise with her for 2 hrs after coming back.
Is it okay if she takes this much time? I am getting worried and do not know who to take advise from? As many of u r experienced please tell me how to deal with this.
Plz feel free to mail me on: vipra.srivastava@timesgroup.com
Hello everyone! I have an 18-month-old daughter with congenital short femur. We have taken her to several different Dr's , including Paley in Baltimore. Currently, three of the Dr's we have seen
recommend waiting until she's older (6 or 7) to do the first lengthening (she will need a total of 2 lengthenings). Paley recommended doing it by age 3. Our daughter functions very well with a
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Dear friends,
hope all of you are doing well, This is sonia (PFFD),could you please introduce me some professional making prothetic center in California ?
Best wishes and peace be with you,
Sonia,
Hi Everbody,
We have a 2 year old daughter with PFFD type C on her left leg. She is active and her PFFD does not slow her down in any way. Currently she is wearing a conventional prosthesis. We were wondering about the Mosely device. Is it made by a specific company or can any prosthetic clinic make it. It seems like everybody that uses it has good results with it.
Thanks!
My daughter is 4 years old and her left leg is 10cm shorter than her right. She functions very well with or without her shoe lift. At this time, her doctor suggested it's time for her to have a surgery and recommended Vans Nes Rotation. My husband and I are having a hard time deciding/dealing with her leg being backwards. We thought of lengthening or prosthetic without surgery, Moseley Device, but we don't know if that's a good idea. Please help us! I know a lot of you went through it and we would like some advise on where we should go on this.
Hi everyone.
Just a quick update as to what's happening with our little
boy Matteo.
We saw Dr Brown at BC Children's Hospital in Vancouver last week and
also spoke with several children/families that are going thru leg lengthening procedures. That's one of the options that we had on our plate prior to the appointment. The other was amputation of both feet (Symes?). With the amount of time that is required for the leg lengthening, and still not be able to use his feet due to his ankles being fused, Matteo would lose most of his childhood being in a "Lizzy" frame. Basically he would need 4 operations per leg. Something we as parents don't want him to have-- (mostly because his feet would still be non-weight bearing.)
I am 11 years old and I love to skateboard.I am in 6th grade and have one happy sister.I am in love with Duke University and I realy want to graduate from there and become a pediatric orthopidic surgeon.I have a home page on matmice.com and my adress is matmice.com/home/stingrayman.I also have one dog , his name is mavrick.It snows a whole lot were we are so I bring him in sometimes.I have tons of freinds.I have been on two crusies both of them where norwegen cruise lines. I have been to 8 contries out of my own usa.I have been to Antigua,Puerto Rico,Camen Islands,St.Thomus,Jamaca,Mexico.
