PFFD VSG2

My son Peter has unilateral PFFD left leg and we are scheduling the lengthening surgery. We are looking for other children near Columbus OH who have had surgery.

Wow, amazing stuff!! http://www.breitbart.com/news/2006/06/28/060628204537.2422eofv.html. Could it be just around the corner? Could we drastically limit the number of sugeries our daughter needs to have by implanting this device in her femur? Wow, here's for hoping.

It seems some engineers/scientists in Alberta have developed a pea-sized device that emits ultrasound waves and stimulates bone growth. It was actually developed as a means to "re-grow" teeth, but they suspect there may be some applicability to bone lengthening.

Just a quick update on Kiaras Surgery...
She had the surgery in March and due to her toes bending she had surgery again in June to have a little cast to hold her toes with a cast... she is walking and her leg is growing really well...
she has physical therapy 2 times a week and she has been walking for 2 weeks.

to all good luck

with care

sonia
kiaras mom.

Has anyone gone through surgeries or doctor in these area's? I live in Mid Michigan and am looking for another opinion somewhat close to home. I have a 2 month old with pffd in right leg. Thanks, Rachell

Our daughter Riley is almost 2 years old and we plan that she will have SuperHip and SuperKnee surgery with Dr. Paley at the end of the year. She is very mobile (walk, kind of run, kick, climb, etc.) with a ~3 inch shoe lift on her left leg - more adventurous and mobile sometimes than her twin brother (who does not have PFFD).

Would anyone be willing to share their experience with either or both of these surgeries? We will be staying with family while we are in Baltimore so at least that part is covered.

A few questions to get started:

1. Did you experience any loss of mobility or comfort after the surgery? How long until your child was fully mobile again? (4 months? 6 months? longer?)