On August 6, 2009 Justin had his Super hip/knee surgery.
It went longer than we or the Dr. Expected as there was more that need to be done. Justin is recovering. He still says this is the way to go!!!
Reading through some threads recently, I notice that several of us started out with 4 toes on our PFFD leg(s). When I was in kindergarten we all took off our shoes and counted our fingers and toes. The oject of the excersize of course was to get to 20, but I was the only kid that came up with 19. It absolutely blew my teachers mind, and turned me into a bit of a superstar at recess. Has anyone else had a similar, or amusing experience like this?
Hi everyone. I know that there have been posts before regarding bikes. Sami is 5 and would love to get a bike. Does anybody have any pictures of their adapted bikes or advice on what you've tried? Sami is Unilateral affecting her left side. She's been able to ride her tricycle by using only her long leg.
The last one was so well received that we are doing another Limb Length Discrepancy chat.
What: Dr. Standard, Head of Pediatric Orthopedics at the International Center for Limb Lengthening is hosting an online chat. Date : Thursday July 30
Time: 9 PM EDT
Place: http://www.chatzy.com/600868137410
Temporary password: lldtest
Day of chat password must be requested by email
You must also register with Chatzy in order to verify your email address.
This is for parents of children with various types of limb length discrepancies, not just PFFD/CFD.
Hi! I posted the blog a month ago "Summary of my story." I just wanted to update everyone on what's going on with me. Since doing my research a month ago & joining this site I have decided to make an appointment with Dr. Paley to see about leg lengthening. I haven't had any prior surgeries, I just wear a prosthetic now and I get along well, but since hearing about Dr. Paley I wanted to see if lengthening was an option for me. I have made my appointment for August 7th. I will update after my appointment once I know more about my options.
Hi all
I would appreciate any feedback on the following:
My daughter (almost 4 yrs) had her second super - hip op in Feb this year. Her spica has been off for 2 months, but still does not want to walk more than is absolutely necessary, and then only with assistance of her walker. (she wears a 10cm lift) She complains of pain, especially in her shins/calves and where the pin is in her hip?? Our doctors tell us to be patient - but with the previous super hip op she was only able to walk properly after they removed the bent pin in her hip.
Just a quick note to let you know that there will be an online chat this Thursday.
What: Dr. Standard, Head of Pediatric Orthopedics at the International Center for Limb Lengthening is hosting our second chat. For those who missed the last one, this is a real time chat where you can ask Dr. Standard questions about treatment of limb length discrepancies in children.
Date : Thursday June 25
Time: 9 PM EDT (Note that this is the time zone for Baltimore, MD or Washington, DC)
Place: http://www.chatzy.com/600868137410
Temporary password: lldkidstest
Does anyone have any advice, how to choose a doctor, specific considerations, etc. for amputating an affected PFFD leg? I'd also be interested in any recommendations for doctors to perform the surgery.
julian is now 1 years old, we went to see dr.davidson @ chop in philly. what a long visit. i just get so frustrated with everything. now they gave me a script for him to try a shoe lift with a wedge or pipe in foot im not sure what that means. his leg is now about 4 inches shorter than the left. he wants to walk so bad but cant. im getting so frustrated. 1st the drive there is 2 hours, we wait for about 1 hr ,1 1/2 hr for the dr to be in the room maybe 10 minutes and say we'll see u back in 6 months & do xrays. he wants to see if julians hip will form any more.
