For anyone who's had a particularly tough day, week or year, this is for you :) I was forwarded this by a friend on facebook and thought it approriate.
Most women become mothers by accident, some by choice,
a few by social pressure and a couple by habit.
This year nearly 100,000 women will become mothers of handicapped children.
Did you ever wonder how these mothers are chosen?
Somehow I visualize God hovering over Earth
Selecting his instruments for propagation with great care and deliberation.
As he observes, he instructs his angels to take notes in a giant ledger.
Dear Members,
This is Sonia again , As l told before l was born with PFFD and lived for 34 years very happily but 3 years ago l picked up a very heavy parcel and brought upto the stairs. and after that l have sweeling in the knee of normal leg, lt became better after 8 months but after that when l do some activities for example go to shopping and cinema etc... lt again swells :(
and a doctor said me l have primary arthritis , is there any person who has this problem? whats the solution , is there any cure? l like to be an active person like before.
Regards and thank you for any help.
alright I've had better days I need info we took shane to shrinners today they want to amputate his foot from his heal to his toes I hate that option he has a perfectly fine foot!!!!! I would like to here from some of you who have had amputatins like this see I am confused where shanes defect is in his femer his knee are at 2 different spots how is cutting off his toes going to affect him with a prosticet on with his knee being at different length bending and sitting yeah he will walk but with his legs bending at 2 different spot how will this effect him!!!!
My son Zachary was born with PFFD. He has just under an inch difference with his right leg. I am seeing an orthopedic doctor close to where I live but an concerned that he has not seen enough of this to really help him. I have contact Dr. Paley but now he is moving to Florida and well that is quite far for me. Does anyone know of any doctors in the Jersey area that might specialize in this? I will go to Chop. They did a wonderful job on my daughter's capular hymangeoma. Also should I be concerned that he is almost 9 months old and not crawling?
My son Julian is 8 months old and was born with pffd of the right leg. He sees Dr. Davidson at CHOPS in Philadelphia. Julian had xrays done at hershey medical center and we found out that he doesnt have a kneecap, or a joint in his hip, i think it's called asatablum? his right leg is about 4 inches shorter than the left. So lengthning may be a option but not sure because of the hip, most likely amputation. Im really worried and upset about everything, im 27 years old and this is my first child. does anyone have any encouraging advice? Please.
Olivia had her first lengthening in May 2008. Her surgeon is Dr. Davidson at Children’s Hospital in Philadelphia (CHOP). After gaining 1.5 inches of length, Olivia developed a knee contracture. Lengthening was stopped at that time. She now wears a 3 inch shoe lift. Even though I would have loved for Olivia to gain 3 inches, it all worked out fine. Olivia was able to get her fixator removed just before she started her first day of school. It made her transition to full-day, 5 day/week preschool all that much easier. She thrives at school and all the kids and teachers love her.
My Niece sent me an e-mail about a young man who was born in 1982 in Australia. He was born with no arms and only one small flipper like leg. He does inspirational speaking all over the world. If anyone is interested, there is a web site where you could check him out. This is it http://www.lifewithoutlimbs.org/index.php
Hi everyone my daughter Sophia is 3 years old and she has pffd. She has her left leg smaller then her right. After the doctors gave us the option of leghtening vs amputation we chose leghtening. Now that she is 3 were are going to start with her fist surgery, which to straighten her left femur. She is going to be in a Spica cast for 6 weeks, and I just wanted to get some suggetions or experiences from people who had them or on their children.
Hi
This is ruairi's mum ruairi was born in 2000 with PFFD and to date has had no surgery , wears a extension prothesis and we are discussing with his doctor the van ness procedure. We would like some information on this from anyone ?
